A wealth of resources are available to help you on your quest to learn more about chronic kidney disease (CKD) and dialysis. Below are several categories with links to other exceptional organizations that help those with kidney disease.
Organizations and Programs
- Dialysis Patient Citizens
This nationwide, nonprofit patient organization is dedicated to improving the quality of life for all dialysis patients.
- Kidney Smart®
Find a class in your area or learn online anytime and get the knowledge you need to take control of your health.
- National Kidney Foundation (NKF)
Offers education, information, and chapters in most states that you can join. The NKF has also developed clinical practice guidelines for the treatment of kidney disease and kidney failure.
- National Kidney Foundation of Southern California
Learn about kidney disease. Ways to prevent and treat disease, patient programs, links, support groups, organ donation faq’s, and how to help.
- Dialysisfinder.com- Dialysis Center search
Find a dialysis center anywhere in the USA. Search by city, state, or zip code. Facility contact information is also available. Addition resouces available on links page.
- Life Options Rehabilitation Program
Dedicated to helping people live long and live well with kidney disease. Offers encouragement and free educational materials, with a special emphasis on staying active through exercise and employment.
- American Kidney Fund
Provides educational programs, clinical research and community service projects.
- American Association of Kidney Patients (AAKP)
AAKP is the voluntary, patient organization, which for more than 40 years, has been dedicated to improving the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease. The programs offered by AAKP, inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives in their communities.
- Alport Syndrome Foundation®
The Alport Syndrome Foundation is a non-profit organization founded in 2007 by a group of families affected by the disease and guided by a medical advisory committee of renowned nephrologists.
- Renal Support Network (RSN)
A nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by chronic kidney disease (CKD).
- National Kidney Registry
The mission of the National Kidney Registry (NKR) “is to save and improve the lives of people facing kidney failure by increasing the quality, speed, and number of living donor transplants in the world.”
- The Nephron Information Center
Allows patient, professionals and the public access to the vast kidney disease resources on the Web. Links. Animated GIFS, preESRD education, Fadem’s Kidney Guide
- How Your Kidneys Work
A thorough but friendly education on the many functions of the kidneys.
- Type 2 Diabetes
Healthline provides a comprehensive overview of type 2 diabetes as a critical starting point for individuals and/or their loved ones.
Recipes & Nutrition
Specific Kidney Diseases
- Calciphylaxis/Calcific Uremic Arteriolopathy (skin ulceration)
Calciphylaxis, also known as Calcific Uremic Arteriolopathy (CUA), is a serious illness that affects persons with kidney disease who are on hemodialysis. Calciphylaxis causes very painful wounds or ulcers on the skin. Currently, there are no clinically proven treatments for calciphylaxis. If you are a patient with calciphylaxis and want to learn more about this clinical trial of an investigational drug for calciphylaxis, go to MyKidneyResearch.com and click “Sign Up.” You will be guided to a form that will connect you with a member of the study team to see if you qualify.
- The PKD Foundation
Provides PKD information and encourages PKD research.
A free service to help you locate dialysis centers closest to you, or centers in places where you wish to travel.
- Kidney Disease Information
Resources and fact sheets from NIDDK.
- Transplant Living
Transplant resources from the United Network for Organ Sharing (UNOS), the organization that maintains the U.S. organ transplant waiting list.
- Dialysis Facility
Compare Medicare’s site for information on selected characteristics and quality statistics of individual dialysis centers.
- Directory of Resources
Renal Web’s extensive listing of links and information of interest to people living with kidney failure.
- Home Dialysis Central
UKidney is a provider of educational tools for the study and practice of nephrology, hypertension management, and kidney transplantation. This site features essential educational contributions from major opinion leaders in nephrology.
Health Related Portals